第一财经•02-2909:46听新闻作者:邹臻杰 ...
来自WAPO的2021肢大认知日相关信息
Dear WAPO Members,
In a couple of days it’s November 1st again, the international day to raise awareness on Acromegaly!
A day to share information on symptoms and the impact the disease will have on people living with Acromegaly.
We hope sharing this information will support early diagnosis and better treatment for all people living with the disease.
Therefor, WAPO will share all possible information and campaigns we receive on the disease, to support the Awareness Day, November 1st!
Please feel free to reshare!
Introducing Acroline®;
Supporting people with acromegaly;
Maintaining a healthy self-image;
Acromegaly health diary;
Talking with your healthcare team;
Treatment journey overview;
Looking after your well-being;
Acromegaly and Health.We are extremely grateful to Pfizer for having reached out and collaborated with the various patient groups along with WAPO in creating supportive material for patients as they start or continue their journey; for family members and friends who wish to support acromegaly patients; and HCPs, who are the reference point in the patient journey and their families.We encourage you to share the news through your social media channels as well as informing your community.
For more information please visit: https://wapo.org/acromegaly/ or contact mail@wapo.org
中医支持临床肢端肥大症患者的治疗:1例报告
TRADITIONAL CHINESE MEDICINES TO SUPPORT THE CLINICAL TREATMENT OF A PATIENT WITH ACROMEGALY: Case report (EN and ES)
Greetings from WAPO! We'd like to thank our wonderful doctors, nurses and allied health professionals who continually hold our best interests in their hearts.
A very special thank you to Dr. Emilio Covarrubias for wiriting this article in English and Spanish for WAPO.
TRADITIONAL CHINESE MEDICINES TO SUPPORT THE CLINICAL TREATMENT OF A PATIENT WITH ACROMEGALY
Case Report
Covarrubias E., Acupuncturista, Kinesiólogo.
Clinical Hospital Red Salud UC - Christus.
Integral health and medicine unit.
Santiago, Chile.
Correspondencia: emilio.covarrubias@gmail.com
In English and Spanish Read full article here
The incorporation of quality of life measurement during the clinical follow-up of these patients has recently been recommended. Since it has been seen that the deterioration in the quality of life persists even when the disease has been resolved and the pharmacological treatment has been completed. From this global alteration of homeostasis in the patient, and deterioration of quality of life, Traditional Chinese Medicine emerges as a complementary option in the management of signs and symptoms after treatment. Through the use of different therapeutic tools such as acupuncture, auriculotherapy, tuina massage, electroacupuncture, moxubustion, among others, the aim is for the person to improve their Qi (vital energy), and as the ultimate goal to restore internal "balance and harmony”. One of the key aspects in the contribution of Traditional Chinese Medicine for the benefit of these patients is the effect of the balance to the Hypothalamus - Pituitary - Adrenal axis, achieving an improvement in patients in multiple systems simultaneously. The following text describes the treatment with Traditional Chinese Medicine of a patient with a diagnosis of acromegaly treated with radiosurgery, facial paralysis in the right hemi face after viral infection, and the evolution during treatment and the results of level control examinations are described of IGF-1.
* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *
Recientemente se recomienda la incorporación de la medición de la calidad de vida durante el seguimiento clínico de estos pacientes. Ya que se ha visto que el deterioro en la calidad de vida persiste aun cuando se haya resuelto la enfermedad y completado el tratamiento farmacológico. De esta alteración global de la homeostasis en el paciente, y deterioro de su calidad de vida, la Medicina Tradicional China surge como una opción complementaria en el manejo de los signos y síntomas posterior al tratamiento. A través del uso de distintas herramientas terapéuticas como acupuntura, auriculoterapia, masaje tuina, electroacupuntura, moxubustión, entre otros, se busca que la persona que mejore su Qi (energía vital), y como fin último lograr restablecer el “equilibrio y armonía” interno. Uno de los aspectos claves en el aporte de la Medicina Tradicional China para beneficio de esos pacientes es el efecto del balance al eje Hipotálamo - Hipofisis – Adrenal logrando una mejoría en los pacientes en multiples sistemas de forma simultánea. En el siguiente texto se describe el tratamiento con Medicina Tradicional China de un paciente con diagnóstico de acromegalia tratado con radiocirugía, parálisis facial en hemi cara derecha posterior a infección viral y se describe la evolución durante el tratamiento y los resultados de exámenes de control de niveles de IGF-1.
The WAPO Board of Directors,
Sheila, Sue, Sandra, JD, Muriël
WAPO 网站 https://www.wapo.org/
我们作为一个全球性组织,加入我们给你带来的好处也是全球性的。加入WAPO后,你所在的组织会得到以下的福利:
(一)享有一个超过40个国家病友组织组成的国际化社区;
(二)共享众多垂体组织带来的,关于病情的重要经验和知识;
(三)全天候的支持,这得益于各国组织拥有不同的时区,你的问题在任何时间都可以得到解答。你可以和其他成员通过个人邮件或者facebook主页取得联系;
(四)一个可以查阅各语种重要文献的图书馆(如:官方文献、权威提示、补助申请等);
(五)拥有联系其他组织的渠道,还可以和拥有丰富经验的医生交流,获得建议;
(六)国际化的平台和支持。
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